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YouTube

From Kinship to Care - Comparative Autoethnographies of Sibling Worlds in Canada and the US

Western University - London via YouTube

Overview

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Explore the complex dynamics of sibling relationships when disability is involved through this comparative autoethnographic presentation examining experiences in Canada and the United States. Analyze how aging with disability affects family structures and relationships across different healthcare and social support systems. Investigate the various stressors that families face when one sibling has a disability, while also discovering the positive experiences and unique bonds that can develop within these family dynamics. Learn to define and apply key concepts including "access intimacy" - the understanding and accommodation that develops between disabled and non-disabled individuals - and "extraordinary measures" as they relate to caregiving and support within sibling relationships. Compare how different national contexts, healthcare systems, and cultural approaches in Canada versus the United States shape the lived experiences of families navigating disability. Gain insights into the emotional, practical, and social dimensions of sibling relationships where disability plays a central role, drawing from personal narratives and research methodologies that center lived experience and storytelling as valid forms of knowledge production.

Syllabus

From Kinship to Care: Comparative Autoethnographies of Sibling Worlds in Canada and the US

Taught by

UWO Developmental Disabilities Program

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