Unmet Needs in Childhood-Onset Sjögren's Disease - Patient and Clinician Perspectives
ERN ReCONNET via YouTube
Overview
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Explore the unmet needs of childhood-onset Sjögren's disease in this 52-minute webinar that presents both clinical and patient perspectives of this rare autoimmune condition. Learn from Dr. Edoardo Marrani, a consultant at Meyer Children Hospital's Rheumatology Unit, who discusses the medical challenges of pediatric Sjögren's including diagnostic difficulties, disease progression, and treatment approaches. Gain valuable insights from Mrs. Ana Vieira, a patient advocate and ePAG representative from Sjögren Europe, who shares the emotional, psychological, and social aspects of living with this condition from childhood. The webinar, moderated by Mrs. Coralie Bouillot and Prof. Gaetane Nocturne, aims to deepen understanding of ongoing challenges in childhood-onset Sjögren's disease by highlighting both clinical complexities and real-life patient experiences. Discover the importance of multidisciplinary care, access to specialists, and individualized treatment approaches for managing this uncommon condition effectively.
Syllabus
Unmet Needs in Childhood-Onset Sjögren's Disease – Patient and Clinician Perspectives
Taught by
ERN ReCONNET