ERN ReCONNET Courses

Fatigue in Systemic Lupus: A LEAF Evidence-Based Update

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Explore fatigue in systemic lupus erythematosus: causes, impacts, and innovative management strategies using the LEAF digital tool for personalized assessment and advice.

• YouTube
• 1 hour
• Self-Paced
• Free Video

The Transition from Benign to Secondary Raynaud's Phenomenon

Explore the pathophysiological mechanisms behind Raynaud's phenomenon progression and discover how nailfold videocapillaroscopy detects early transitions to secondary forms.

• YouTube
• 51 minutes
• Self-Paced
• Free Video

The New Clinical Patient Management System 2.0 - Virtual Consultations Across Borders

Discover how CPMS 2.0 enables EU clinicians to access virtual consultations with specialized experts for rare disease management across European Reference Networks.

• YouTube
• 34 minutes
• Self-Paced
• Free Video

ChatGPT and More - How AI Will Revolutionize Medicine and the Management of Rare Diseases

Discover how Large Language Models like ChatGPT are transforming medicine, especially for rare connective tissue diseases, by enhancing patient care and clinical decision-making.

• YouTube
• 53 minutes
• Self-Paced
• Free Video

Everything You Always Wanted to Know About Ehlers-Danlos Syndromes - Part Two

Discover patient-driven insights into Ehlers-Danlos Syndromes through interactive Q&A with expert Dr. Marco Castori, addressing community questions about EDS management and care.

• YouTube
• 50 minutes
• Self-Paced
• Free Video

Autoantibodies and Clinical Phenotypes in Idiopathic Inflammatory Myopathies

Explore autoantibodies in myositis and their clinical associations to identify specific subtypes like dermatomyositis and antisynthetase syndrome for optimal patient management.

• YouTube
• 46 minutes
• Self-Paced
• Free Video

Vaccination in Undifferentiated Connective Tissue Disease (UCTD)

Explore vaccination safety in undifferentiated connective tissue disease, examining evidence on disease development and symptom worsening in UCTD patients.

• YouTube
• 40 minutes
• Self-Paced
• Free Video

Quality of Life in Relapsing Polychondritis

Explore how relapsing polychondritis impacts quality of life through groundbreaking research involving 274 patients from 22 countries, revealing key disease burden domains.

• YouTube
• 36 minutes
• Self-Paced
• Free Video

Microvascular Involvement in Antiphospholipid Syndrome (APS)

Explore microvascular involvement in antiphospholipid syndrome with expert insights from Prof. Savino Sciascia on this complex autoimmune condition affecting kidneys and blood vessels.

• YouTube
• 59 minutes
• Self-Paced
• Free Video

Pregnancy in Undifferentiated Connective Tissue Disease - UCTD

Explore pregnancy management in UCTD, covering counseling, treatment, and post-delivery care with expert insights from Dr. Massimo Radin.

• YouTube
• 34 minutes
• Self-Paced
• Free Video

Osteoporosis in Rare and Complex Connective Tissue Diseases

Explore osteoporosis mechanisms and treatment strategies in rare connective tissue diseases through expert insights on epidemiology, pathophysiology, and tailored management approaches.

• YouTube
• 58 minutes
• Self-Paced
• Free Video

Exercise in Adult Idiopathic Inflammatory Myopathies - IIMs

Discover evidence-based exercise strategies for treating adult idiopathic inflammatory myopathies, including initiation and maintenance protocols from leading experts.

• YouTube
• 47 minutes
• Self-Paced
• Free Video

Unconventional Therapies in Connective Tissue Diseases

Explore non-pharmacological therapies like animal-assisted therapy, sound healing, music therapy, and dance movement to complement traditional treatments for connective tissue diseases.

• YouTube
• 33 minutes
• Self-Paced
• Free Video

From Basics to Updates for Cutaneous Lupus Erythematosus (CLE)

Explore the diagnosis and treatment of Cutaneous Lupus Erythematosus (CLE) with Dr. François Chasset, covering special features and recent updates for managing skin manifestations in this comprehensive webinar.

• YouTube
• 41 minutes
• Self-Paced
• Free Video

Unmet Needs in Childhood-Onset Sjögren's Disease - Patient and Clinician Perspectives

Explore childhood-onset Sjögren's disease through dual perspectives as experts discuss clinical challenges, diagnosis difficulties, treatment approaches, and the emotional impact on children and families living with this rare autoimmune condition.

• YouTube
• 52 minutes
• Self-Paced
• Free Video