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YouTube

The Path to Better Treatments - A Patient-Friendly Guide to Sjögren's Clinical Trials

ERN ReCONNET via YouTube

Overview

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Learn about Sjögren's syndrome clinical trials in this comprehensive 47-minute webinar designed to help patients understand how new treatments are developed and what participation involves. Discover the purpose and different phases of clinical research, how patient safety and well-being are protected throughout the process, and get answers to common questions about treatment testing, study eligibility, and daily participation requirements. Explore how clinical research advances scientific understanding and leads to improved care options, with specific focus on current and emerging Sjögren's studies addressing dryness, fatigue, pain, and other quality-of-life symptoms. Gain insights into study design and outcome measures while hearing from Prof. Isabelle Peene, Associate Professor in Rheumatology and Head of Clinic at Ghent University Hospital, who leads the Belgian Sjögren'S disease Transition Trial and serves as an active member of the European Reference Network ReCONNET Sjögren's Disease Group. Understand your options and the research paving the way to better therapies for the Sjögren's community, with practical, trustworthy information to support informed decision-making about potential clinical trial participation.

Syllabus

The Path to Better Treatments: A Patient-Friendly Guide to Sjögren’s Clinical Trials

Taught by

ERN ReCONNET

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