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Explore the critical aspects of early diagnosis and multidisciplinary team approaches in treating Idiopathic Inflammatory Myopathies (IIMs) through this informative ERN ReCONNET webinar. Gain insights from expert speakers, including a rheumatologist and patient advocates, as they discuss the importance of timely diagnosis, multidisciplinary treatment strategies, and the role of patient organizations. Designed for healthcare professionals, patients, caregivers, and family members affected by IIMs, learn about the Danish myositis Registry, the Euromyositis Registry, and ongoing research initiatives. Discover patient-led projects, such as informative materials and exercise programs, aimed at improving the lives of those with myositis. Understand the challenges and experiences of living with various forms of myositis, including polymyositis and overlap-myositis, from the perspective of patient advocates actively involved in support groups, research, and international collaborations.
