Everything You Always Wanted to Know About Ehlers-Danlos Syndromes - Part Two
ERN ReCONNET via YouTube
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Join this interactive 50-minute webinar designed to address lingering questions about Ehlers-Danlos Syndromes (EDS) from the patient and caregiver community. Participate in a patient-driven discussion where Dr. Marco Castori, Head of the Division of Medical Genetics at Fondazione IRCCS Casa Sollievo della Sofferenza in Italy, answers questions previously collected through a community survey and responds to live chat interactions. Learn from an expert who has specialized in hereditary connective tissue disorders since 2004 and obtained his PhD with a thesis on hypermobile Ehlers-Danlos syndrome. Engage with moderators ePAG Charissa Frank from the Flemish Association for Hereditary Connective Tissue Disorders and ePAG Eva Collado from the Spanish Patient Organization for Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder, who facilitate this collaborative educational experience. Discover comprehensive information about EDS through this second part of the series, where both prepared content and spontaneous questions create a dynamic learning environment tailored to the real concerns of those affected by these hereditary connective tissue disorders.
Syllabus
Everything you always wanted to know about Ehlers-Danlos Syndromes (EDS) – Part two
Taught by
ERN ReCONNET