National Scleroderma Foundation Courses

CAR T-Cell Therapy in Systemic Sclerosis - Clinical Trials and Potential Benefits

Explore upcoming CAR T-Cell therapy trials for Systemic Sclerosis, including benefits, criteria, and information sources with experts Dr. Khanna and Dr. Ghosh.

• YouTube
• 1 hour
• On-Demand
• Free Video

Stem Cell Transplantation in Systemic Sclerosis

Explore stem cell transplantation for scleroderma: current treatments, future prospects, and essential insights from Dr. Dinesh Khanna's expert discussion.

• YouTube
• 38 minutes
• On-Demand
• Free Video

Pulmonary Arterial Hypertension - What It Means for Scleroderma Patients

Explore pulmonary hypertension's impact on scleroderma patients, including diagnosis, treatment, risks, and monitoring for early intervention and improved outcomes.

• YouTube
• 49 minutes
• On-Demand
• Free Video

Scleroderma and Pain: Recognition, Communication and Management

Explore pain management strategies for scleroderma, including exercise, medications, diet, and meditation, with expert insights from Dr. Saketkoo.

• YouTube
• 1 hour 5 minutes
• On-Demand
• Free Video

Morphea Update: Understanding Localized Scleroderma - Diagnosis and Treatment

Explore localized scleroderma's impact on skin and underlying tissue, its manifestations in different age groups, evaluation methods, and treatment options.

• YouTube
• 1 hour 2 minutes
• On-Demand
• Free Video

Laughing at Tigers - Coping with Scleroderma

Descubra cómo el humor y la risa pueden ser poderosas herramientas para enfrentar la esclerodermia y mejorar la calidad de vida, de la mano de una sobreviviente inspiradora.

• YouTube
• 58 minutes
• On-Demand
• Free Video

Living with a Feeding Tube: The Patient Perspective

Discover essential tips and advice for living successfully with a feeding tube, improving quality of life for Scleroderma patients. Learn about types, products, and practical strategies.

• YouTube
• 29 minutes
• On-Demand
• Free Video

Navigating GI Issues in Scleroderma

Explore nutritional concerns, diagnostic studies, medication effects, and dietary considerations for gastrointestinal issues in scleroderma patients.

• YouTube
• 1 hour 11 minutes
• On-Demand
• Free Video

Musculoskeletal Manifestations in Systemic Sclerosis

Explore scleroderma's impact on the musculoskeletal system and learn strategies to manage joint pain and improve function with expert insights.

• YouTube
• 1 hour 3 minutes
• On-Demand
• Free Video

Scleroderma Research: Past, Present and Future

Explore scleroderma clinical trials: past successes, FDA approval process, trial design, oversight, eligibility criteria, and considerations for participation.

• YouTube
• 57 minutes
• On-Demand
• Free Video

Raynaud's, Ulcerations and Calcinosis in Systemic Sclerosis

Explore Raynaud's, ulcerations, and calcinosis in systemic sclerosis, including blood vessel changes, treatment options, and their impact on scleroderma patients.

• YouTube
• 54 minutes
• On-Demand
• Free Video

Scleroderma Research Progress: 25 Years of Advancements and Future Prospects - 2023 Closing Keynote

Explore 25 years of scleroderma research progress and future prospects towards finding a cure with Dr. Feghali-Bostwick's insightful keynote address.

• YouTube
• 48 minutes
• On-Demand
• Free Video

The Pregnancy Journey in Scleroderma - From Planning to Raising Children

Explore pregnancy with scleroderma: from planning to raising children. Learn about risks, preconception care, and managing the condition during and after pregnancy.

• YouTube
• 46 minutes
• On-Demand
• Free Video

Taking Care of Your Hands and Face: Stretches and Assistive Devices for Scleroderma - Dr. Janet Poole

Discover exercises and techniques to improve hand, face, and mouth mobility. Learn about assistive devices and strategies for daily tasks to enhance independence and protect hands.

• YouTube
• 56 minutes
• On-Demand
• Free Video

Fenomeno de Raynaud en la Esclerodermia

Comprenda el fenómeno de Raynaud en la esclerodermia: causas, síntomas y tratamientos. Aprenda a manejar esta complicación común con el Dr. Alfredo Guilllen.

• YouTube
• 21 minutes
• On-Demand
• Free Video