National Scleroderma Foundation Courses

Taking Care of the Caregiver: Survival and Self-Care Techniques

2 reviews

Learn survival and self-care techniques for caregivers, including burnout prevention, advocacy, and finding support. Discover practical tools and strategies to maintain well-being while caring for others.

• YouTube
• 54 minutes
• On-Demand
• Free Video

Music Therapy for Wellness

2 reviews

Explore music therapy techniques for enhancing wellness and managing stress, led by certified music therapist Erin Raber.

• YouTube
• 1 hour
• On-Demand
• Free Video

Apoyo Emocional Para Familiares Y Cuidadores

1 review

Descubre estrategias de apoyo emocional para familiares y cuidadores de pacientes con esclerodermia pediátrica de la mano de la psicóloga clínica Judith Gallardo.

• YouTube
• 18 minutes
• On-Demand
• Free Video

Los Pulmones y la Esclerodermia

Explore la afectación pulmonar en la esclerodermia, sus tipos, gravedad y tratamientos para tomar decisiones informadas sobre el manejo de esta condición.

• YouTube
• 40 minutes
• On-Demand
• Free Video

Cosmetic Procedures in Systemic Sclerosis - Risks and Benefits

Explore risks and benefits of cosmetic procedures for scleroderma patients. Gain insights from expert Dr. Heidi Jacobe on making informed decisions about treatment options.

• YouTube
• 55 minutes
• On-Demand
• Free Video

Nutrition and the Microbiome in Systemic Sclerosis - Dietary Modifications for Symptom Management

Explore dietary modifications to alleviate gastrointestinal symptoms and rebalance gut microbiome in systemic sclerosis patients. Learn strategies for improving overall well-being through nutrition.

• YouTube
• 52 minutes
• On-Demand
• Free Video

Medication Side Effects and Vaccinations for Scleroderma Patients

Learn to manage scleroderma medication side effects, communicate effectively with doctors, and understand the importance of vaccinations for autoimmune patients taking immunosuppressants.

• YouTube
• 54 minutes
• On-Demand
• Free Video

Calcinosis in Scleroderma: Causes, Symptoms, and Treatment Options

Explore causes, symptoms, and treatments for calcinosis in scleroderma, including medications, lifestyle changes, and surgical interventions.

• YouTube
• 53 minutes
• On-Demand
• Free Video

The Pregnancy Journey in Scleroderma

Explore pre-conception planning, pregnancy timing, outcomes, and fertility for scleroderma patients. Gain insights into managing pregnancy with this condition.

• YouTube
• 38 minutes
• On-Demand
• Free Video

Scleroderma and Cancer: What are the Connections

Explore the link between scleroderma and cancer, including recent research suggesting cancer as a potential trigger for scleroderma in some patients. Discuss implications for treatment and screening.

• YouTube
• 54 minutes
• On-Demand
• Free Video

TeleReach: Using TeleRehab to Improve Hand Function in Scleroderma

Explore telerehab benefits for improving hand function in scleroderma patients, and share your input to help shape future programs.

• YouTube
• 57 minutes
• On-Demand
• Free Video

The Importance of Community in Scleroderma Care - 2024 National Scleroderma Conference Keynote

Explore the significance of community in scleroderma care with Dr. Tracy Frech's expert insights on early diagnosis and effective healthcare delivery for systemic sclerosis patients.

• YouTube
• 36 minutes
• On-Demand
• Free Video

Nutrition and Diet

Explore nutrition and diet strategies with expert Lon Ben-Asher, focusing on tailored approaches for managing scleroderma and improving overall health.

• YouTube
• 51 minutes
• On-Demand
• Free Video

CDMRP Webinar on FY24 PRMRP Funding Opportunities - Learn About the Funding Process and How to Apply

Discover FY24 PRMRP funding opportunities, application processes, and success strategies. Gain insights into the CDMRP's funding mechanism and enhance your grant proposal skills.

• YouTube
• 44 minutes
• On-Demand
• Free Video

Proclamations and Light It Teal for Scleroderma Awareness Month 2024

Learn how to raise scleroderma awareness through community proclamations and teal light-ups during June's Scleroderma Awareness Month.

• YouTube
• 58 minutes
• On-Demand
• Free Video