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National Scleroderma Foundation

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National Scleroderma Foundation Courses

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Taking Care of the Caregiver: Survival and Self-Care Techniques
4 ratings

Learn survival and self-care techniques for caregivers, including burnout prevention, advocacy, and finding support. Discover practical tools and strategies to maintain well-being while caring for others.
- YouTube
- 54 minutes
- Self-Paced
- Free Video
Music Therapy for Wellness
3 ratings

Explore music therapy techniques for enhancing wellness and managing stress, led by certified music therapist Erin Raber.
- YouTube
- 1 hour
- Self-Paced
- Free Video
Apoyo Emocional Para Familiares Y Cuidadores
1 rating

Descubre estrategias de apoyo emocional para familiares y cuidadores de pacientes con esclerodermia pediátrica de la mano de la psicóloga clínica Judith Gallardo.
- YouTube
- 18 minutes
- Self-Paced
- Free Video
Navigating and Understanding The Post Lung Transplant Journey

Explore the post-lung transplant journey with experts discussing recovery, immunosuppression, physical therapy, and quality of life changes in this comprehensive panel presentation.
- YouTube
- 1 hour 9 minutes
- Self-Paced
- Free Video
Chronic Pain Reset - 30 Days of Activities, Practices, and Skills to Help You Thrive

Discover Dr. Hassett's approach to managing chronic pain through activities, practices, and skills designed to help individuals thrive despite pain, based on her book "Chronic Pain Reset."
- YouTube
- 1 hour 1 minute
- Self-Paced
- Free Video
Advocating for Scleroderma Awareness Proclamations - How to Request from Local Officials

Discover how to request scleroderma awareness proclamations from local officials with experienced advocates Desiree James and Monica Ramirez in this informative #TealTalk session.
- YouTube
- 43 minutes
- Self-Paced
- Free Video
Beyond the Crisis: Kidney Health and Scleroderma

Explore kidney health in scleroderma patients, focusing on prevention, early detection, and management strategies beyond crisis situations with Dr. Anna Gaddy.
- YouTube
- 56 minutes
- Self-Paced
- Free Video
Music Therapy and the Power of Breath

Discover the therapeutic benefits of music and breathing techniques for managing scleroderma symptoms in this National Scleroderma Foundation presentation.
- YouTube
- 52 minutes
- Self-Paced
- Free Video
How to Assess Activity in Juvenile Systemic Scleroderma

Discover how to evaluate activity in juvenile systemic scleroderma with expert insights from Dr. Ivan Foeldvari in this informative medical presentation.
- YouTube
- 45 minutes
- Self-Paced
- Free Video
Los Pulmones y la Esclerodermia

Explore la afectación pulmonar en la esclerodermia, sus tipos, gravedad y tratamientos para tomar decisiones informadas sobre el manejo de esta condición.
- YouTube
- 40 minutes
- Self-Paced
- Free Video
Cosmetic Procedures in Systemic Sclerosis - Risks and Benefits

Explore risks and benefits of cosmetic procedures for scleroderma patients. Gain insights from expert Dr. Heidi Jacobe on making informed decisions about treatment options.
- YouTube
- 55 minutes
- Self-Paced
- Free Video
Nutrition and the Microbiome in Systemic Sclerosis - Dietary Modifications for Symptom Management

Explore dietary modifications to alleviate gastrointestinal symptoms and rebalance gut microbiome in systemic sclerosis patients. Learn strategies for improving overall well-being through nutrition.
- YouTube
- 52 minutes
- Self-Paced
- Free Video
Medication Side Effects and Vaccinations for Scleroderma Patients

Learn to manage scleroderma medication side effects, communicate effectively with doctors, and understand the importance of vaccinations for autoimmune patients taking immunosuppressants.
- YouTube
- 54 minutes
- Self-Paced
- Free Video
Calcinosis in Scleroderma: Causes, Symptoms, and Treatment Options

Explore causes, symptoms, and treatments for calcinosis in scleroderma, including medications, lifestyle changes, and surgical interventions.
- YouTube
- 53 minutes
- Self-Paced
- Free Video
The Pregnancy Journey in Scleroderma

Explore pre-conception planning, pregnancy timing, outcomes, and fertility for scleroderma patients. Gain insights into managing pregnancy with this condition.
- YouTube
- 38 minutes
- Self-Paced
- Free Video

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