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Learn about hypertrophic cardiomyopathy (HCM) patient advocacy and support resources in this 27-minute symposium presentation featuring Lisa Salberg, CEO of the Hypertrophic Cardiomyopathy Association (HCMA). Discover the mission and initiatives of the HCMA, understand how patient advocacy organizations support individuals and families affected by HCM, and explore available resources for education, research funding, and community building. Gain insights into the patient perspective on living with HCM, learn about ongoing research efforts and clinical trials, and understand how advocacy groups work to improve diagnosis, treatment, and quality of life for those with this genetic heart condition. Access information about support networks, educational materials, and ways to get involved in the HCM community through the association's programs and initiatives.
