Exploring What Matters - What Families Value in Complex Surgical Decision-Making

Join this Complex Care Journal Club podcast episode where Dr. Jody Lin examines a qualitative study investigating shared decision-making processes for neuromuscular scoliosis surgery in children with medical complexity. Discover the diverse range of family values and preferences that influence surgical decision-making, including quality of life considerations, care burden factors, and long-term outcome expectations. Learn how families navigate complex medical decisions when their children face significant health challenges, and explore the implications these findings have for clinical practice. Understand the methodology behind qualitative research in pediatric complex care and examine how healthcare providers can better support families through difficult surgical decisions. Gain insights into the decision-making framework that families use when weighing the risks and benefits of major surgical interventions for children with neuromuscular conditions. Explore practical applications for improving shared decision-making in pediatric complex care settings and discover next steps for research in this critical area. Access the complete transcript and referenced journal articles to deepen your understanding of family-centered care approaches in pediatric surgery. Hosted by Dr. Kathleen Huth from Boston Children's Hospital, featuring Dr. Jody Lin, a pediatric hospitalist and assistant professor at the University of Utah, this episode provides valuable perspectives for clinicians, researchers, advocates, and families involved in complex pediatric care decisions.