National Scleroderma Foundation Courses

The Pregnancy Journey in Scleroderma

Explore pre-conception planning, pregnancy timing, outcomes, and fertility for scleroderma patients. Gain insights into managing pregnancy with this condition.

• YouTube
• 38 minutes
• Self-Paced
• Free Video

Scleroderma and Cancer: What are the Connections

Explore the link between scleroderma and cancer, including recent research suggesting cancer as a potential trigger for scleroderma in some patients. Discuss implications for treatment and screening.

• YouTube
• 54 minutes
• Self-Paced
• Free Video

TeleReach: Using TeleRehab to Improve Hand Function in Scleroderma

Explore telerehab benefits for improving hand function in scleroderma patients, and share your input to help shape future programs.

• YouTube
• 57 minutes
• Self-Paced
• Free Video

The Importance of Community in Scleroderma Care - 2024 National Scleroderma Conference Keynote

Explore the significance of community in scleroderma care with Dr. Tracy Frech's expert insights on early diagnosis and effective healthcare delivery for systemic sclerosis patients.

• YouTube
• 36 minutes
• Self-Paced
• Free Video

Nutrition and Diet

Explore nutrition and diet strategies with expert Lon Ben-Asher, focusing on tailored approaches for managing scleroderma and improving overall health.

• YouTube
• 51 minutes
• Self-Paced
• Free Video

CDMRP Webinar on FY24 PRMRP Funding Opportunities - Learn About the Funding Process and How to Apply

Discover FY24 PRMRP funding opportunities, application processes, and success strategies. Gain insights into the CDMRP's funding mechanism and enhance your grant proposal skills.

• YouTube
• 44 minutes
• Self-Paced
• Free Video

Proclamations and Light It Teal for Scleroderma Awareness Month 2024

Learn how to raise scleroderma awareness through community proclamations and teal light-ups during June's Scleroderma Awareness Month.

• YouTube
• 58 minutes
• Self-Paced
• Free Video

CAR T-Cell Therapy in Systemic Sclerosis - Clinical Trials and Potential Benefits

Explore upcoming CAR T-Cell therapy trials for Systemic Sclerosis, including benefits, criteria, and information sources with experts Dr. Khanna and Dr. Ghosh.

• YouTube
• 1 hour
• Self-Paced
• Free Video

Stem Cell Transplantation in Systemic Sclerosis

Explore stem cell transplantation for scleroderma: current treatments, future prospects, and essential insights from Dr. Dinesh Khanna's expert discussion.

• YouTube
• 38 minutes
• Self-Paced
• Free Video

Pulmonary Arterial Hypertension - What It Means for Scleroderma Patients

Explore pulmonary hypertension's impact on scleroderma patients, including diagnosis, treatment, risks, and monitoring for early intervention and improved outcomes.

• YouTube
• 49 minutes
• Self-Paced
• Free Video

Scleroderma and Pain: Recognition, Communication and Management

Explore pain management strategies for scleroderma, including exercise, medications, diet, and meditation, with expert insights from Dr. Saketkoo.

• YouTube
• 1 hour 5 minutes
• Self-Paced
• Free Video

Morphea Update: Understanding Localized Scleroderma - Diagnosis and Treatment

Explore localized scleroderma's impact on skin and underlying tissue, its manifestations in different age groups, evaluation methods, and treatment options.

• YouTube
• 1 hour 2 minutes
• Self-Paced
• Free Video

Laughing at Tigers - Coping with Scleroderma

Descubra cómo el humor y la risa pueden ser poderosas herramientas para enfrentar la esclerodermia y mejorar la calidad de vida, de la mano de una sobreviviente inspiradora.

• YouTube
• 58 minutes
• Self-Paced
• Free Video

Living with a Feeding Tube: The Patient Perspective

Discover essential tips and advice for living successfully with a feeding tube, improving quality of life for Scleroderma patients. Learn about types, products, and practical strategies.

• YouTube
• 29 minutes
• Self-Paced
• Free Video

Navigating GI Issues in Scleroderma

Explore nutritional concerns, diagnostic studies, medication effects, and dietary considerations for gastrointestinal issues in scleroderma patients.

• YouTube
• 1 hour 11 minutes
• Self-Paced
• Free Video