Explore the role of patient advocacy in genomics
Genomics is transforming global healthcare and research, but who gets to shape the future of this powerful science?
On this course, you’ll discover how patients, research participants and their representatives contribute meaningfully to genomic research, clinical decision-making and healthcare policy.
You’ll begin by exploring the foundations of genomics, its role in medicine, and why public and patient involvement is vital for ethical, equitable progress. You’ll reflect on challenges like data ethics and diversity in genomic studies.
Build your confidence and skills as a patient advocate
Your learning continues with an exploration into how individuals and communities are influencing genomics. You’ll discover how patient voices can help to set research priorities, co-design studies, and shape more inclusive healthcare.
Through international case studies, you’ll see how lived experience can guide change in diverse global settings.
Develop your communication and co-creation toolkit
You’ll practise key advocacy skills like storytelling, goal setting, and peer collaboration, while considering the personal impact of advocacy.
Reflection activities will help you build strategies tailored to your goals, whether you’re new to advocacy, expanding your role or keen to support others’ advocacy through your own research or healthcare work.
Make a real-world impact in the genomics ecosystem
By the end of this course, you’ll feel empowered to participate in and influence the genomics ecosystem.
With your personal story or advocacy plan in hand, you’ll be ready to join research discussions, connect with professionals, and shape a future where diverse patient voices lead the way.
This course is designed for patients, participants, caregivers and representatives who want to contribute to genomics research and healthcare. It’s also ideal for clinicians and researchers aiming to strengthen patient involvement in their work.
